The Irish Patients’ Association’s Mission is to keep the patient at the centre of the healthcare system. It does this by advocating for the needs of patients to be paramount while working in partnership with health providers. Through contact with patients, their families, and their carers, the Irish Patients Association (IPA) keeps abreast of ongoing and emerging patient needs. The Association addresses various committees, working groups and public bodies on behalf of patients.
The Irish Patients’ Association, founded in 1995, was Ireland’s first cross disease patient advocacy group. It is not a membership-based organisation but deals directly with patients, their families or indeed patient groups. As independent advocates, we have provided information, advice and support to over 11000 patients and families. We are non-political, we have commissioned academic and other research on Patients’ Rights, Counterfeit Medicines, Health Care acquired infections, Off Label Medicines, and Patient Safety. We do our work pro-bono, currently with very limited resources. We continue to work in a respectful partnership with policy makers, HSE, regulatory and other stakeholders. We do not speak for all patients but we do reflect the need’s and experiences of the patients who have engaged with us,